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27th Apr 2018

Alfie Evans’ parents say they want to take terminally ill toddler home to live

Keeley Ryan

Alfie Evans’ parents have told how they want to take the terminally ill toddler home to live.

The 23-month-old toddler suffers from a degenerative neurological condition that has left him in a “semi-vegetative state”.

After another bid by his parents, Tom Evans, 21, and 20-year-old Kate James, doctors switched off Alfie’s life support on Monday.

Mr Evans said on Thursday that he hoped to have a “positive” meeting with medical staff, where he confirmed the couple had dropped their bid to take Alfie to Italy for treatment.

According to the Independent, he told reporters outside Alder Hey Children’s Hospital that they were going to ask medical staff, instead, if they could take Alfie home.

He added:

“Alfie doesn’t need intensive care anymore. Alfie is lying on the bed with one litre of oxygen going into his lungs and the rest is him.

“Some people say it’s a miracle, it’s not a miracle, it’s a misdiagnosis.

“All I ask for now is for this meeting to be a positive one, and I hope to have Alfie, on the terms of mine and Alder Hey, to be home within a day or two.

“If the meeting doesn’t go well today, well then, I’ll go back to court.”

He also accused doctors at the children’s hospital of being “wrong” about their diagnosis.

He continued:

“Alfie lives, comfortably, happily, without ventilation, without any form of ventilation.

“That must be enough for you now to consider that Alfie may prove you wrong.”

The publication reports that lawyers representing the children’s hospital said Alfie’s condition was irreversible, with no evidence that it had changed.

They added that while the fact that Alfie had continued to breathe un-assisted may have surprised the general public, the specialists were not surprised – and said it had never been suggested the toddler would die as soon as his life-support was withdrawn.