The condition leaves him “paralysed and in agony”.
Jack P. Shepherd’s son is battling with a one-in-a-million genetic disorder called alternating hemiplegia of childhood (AHC) and is said to suffer through agonising seizures.
Eight-year-old Greyson is Shepherd’s son from a one-night stand in 2010 with Sammy Milewski, who the actor pays child maintenance for.
Speaking of her son’s agony, mum Sammy told The Mirror:
“If you saw what Greyson goes through on a daily basis, it’s heartbreaking.
“I don’t want to have to keep him cooped up, it’s really sad for him.”
Sammy says her son’s seizures come in one of two ways – his body can go limp and stay that way for up to three weeks or his body tenses up so much that he needs medication to relax the muscles.
Greyson’s illness is incurable although Sammy hopes his symptoms will get better when he gets access to a medical cannabis oil treatment which is now available in the UK.
“I have been fighting for two years for Greyson to be prescribed cannabis oil and doctors assure me they will give it the go-ahead by the end of November.
“We’ve tried absolutely everything and I hope this is the answer.
“I know of two parents of kids with AHC in the US who have described cannabis oil as life-changing for their kids and I just hope it works for my son.”
Jack has never met his son Greyson and has two other children from a previous relationship, Nyla, nine, and Reuben, five.
