Jesy Nelson gives update on baby twins after opening up about their diagnosis

It comes after she revealed their SMA1 diagnosis

The singer welcomed her twin daughters, Ocean and Story, with her fiancé, Zion Foster, in May, though the girls arrived a little earlier than expected.

During her pregnancy, the former Little Mix singer was diagnosed with twin-to-twin transfusion syndrome (TTTS), which is a rare condition that can pose serious risks to one or both babies.

On January 4, Jesy took to her Instagram to announce that her baby girls have been diagnosed with SMA Type 1 or Werdnig-Hoffman illness, the most severe form of spinal muscular atrophy.

This disabling condition is lifelong and causes severe muscle weakness as well as severe breathing and swallowing issues.

Left untreated, the condition can be fatal.

Jesy explained in her video: “If it’s not treated in time, your baby’s life expectancy will not make it past the age of two.”

Since opening up about her little girls' condition, Jesy has now revealed a glimpse of her little ones.

Yesterday (Wednesday, January 14), Jesy posted some sweet snaps of Ocean and Story all bundled up in their pram on a walk outside.

Jesy wrote alongside the image: “Winter walks"

Then in a second post, the singer posted a photo of her and her mother pushing Ocean and Story's pram.

Jesy's recent update comes just a week after she gave her first interview regarding her daughter's condition.

On ITV's This Morning, she admitted that Ocean and Story's diagnosis could have been recognised sooner.

“The thing that’s just mad to me is that I knew and saw all of the signs before I even knew what SMA was. When I left NICU, it was hammered home to me, ‘Do not compare your baby, they’re not going to reach the same milestones as they are because they’re premature,’” she explained.

Jesy went on to explain how she was more focused on checking her twins' temperature and their breathing, rather than them being able to move their legs.

“It makes me so sad when I watch back the videos now from when they came home from NICU until now, they’re moving their legs, and then week two and three, it just gets less and less until a month later, it stops,” she shared.

She went on to add that it is “so vital” that the diagnosis is detected from birth.

Finally, Jesy went on to share insight into what the future may hold for her daughters.

“There’s three different treatments that you can get. They’ve had a one-off infusion, which basically puts back the gene back in their bodies that they don’t have. An easier way to explain it is that it stops any of the muscles that are still working from dying, but any that have gone, you can’t gain them back,” she confirmed.

“Now it will just be down to a case of constant physio […] We’ve been told that they will probably never walk, regain their neck strength, and they are going to be in wheelchairs. There are so many stories where parents have been told this, and then their children have gone on to do incredible things,” Jesy noted.

“I believe that you’ve just got to manifest this into existence. They’re still smiling, they’re still happy. They have each other, and that’s the main thing that I’m so grateful for because they could be doing this by themselves, but they’re twins, and they’re going through this together, and I think that’s beautiful,” she added.