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7 years ago
SMA
The Lives Of These Two Little Girls Rested On A Decision By The HSE. Today We Have Some Fantastic News..
Little Lara and Nellie have a very rare neuromuscular condition. SMA stands for Spinal Muscular Atrophy and is genetically inherited. It affects the ability to walk, arm, hand, head and neck movement as well as swallowing. Children diagnosed with this terrible condition typically have a life expectancy of two years. But a drug was developed that […]
9 years ago
This Dad’s Plea To The HSE For His Little Girl Will Break Your Heart AND Make You Take Action
Nellie is almost two years old, she loves Peppa Pig and bathtime and is a very happy little girl. But Nellie is also very, very sick – she was diagnosed with SMA type 1 when she was just seven months old. Her dad, Stephen, told us that it came as a huge shock to him […]
9 years ago