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10th June 2019
01:17pm BST

Talking to Buzzfeed News, Taylor's mum gushed about how cool her hair is.
"Her hair looks amazing, like she’s a mini Albert Einstein. It can be placed in a pony tail that will often stick straight up through the top of her head."They first noticed how different was when she was just a baby.
"It was a little unique, it was fuzzy, and we expected that it would eventually fall out,that never happened."Most people diagnosed with UH have silvery or fair coloured hair that is prone to being dry and frizzy. Although they will always have the mutation, some people have outgrown the symptoms as they get older, and their hair quality changes over time, but this isn't the case for everyone and some with UHS will always have fluffy hair.
Having grown up with frizzy curls that like to do their own thing I have an inkling of what Taylor and her mum have to deal with on a daily basis.
Taylor's family hope that she will love herself and her unique hair and that the world will too, but with that absolutely adorable face who wouldn't melt for her?
If you'd like to follow Taylor and her mum Cara and find out more about UHS, you can over on their fan page.
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